Special Needs Resources
Advanced Therapy Solutions
Advanced Therapy Solutions (ATS) was founded by OT, Dillen Hartley, and PT, Niel Visser, to provide physical and occupational therapy for adults and children. This South Carolina-based organization receives referrals from several places in SC and all over the world. The website includes:
Information about their locations and the staff that works at each facility
Information about services provided at each location
Information about the organization’s history as well as employment and volunteer opportunities
Contact information
A medical library and additional informative links
Patient forms, testimonials, and FAQs
BabyNet
“BabyNet is South Carolina’s interagency early intervention system for infants and toddlers under three years of age with developmental delays, or who have conditions associated with developmental delays.” This website informs parents, caregivers, doctors, and more about the resources available for a child with developmental delays or struggles associated with developmental delays. This resource includes:
Information on where to find a BabyNet office
Information for BabyNet providers
Resources such as BabyNet forms and state and federal reporting
A place to refer a child
Wondermoms
Wondermoms understands that one of the greatest resources for a special needs parent is to learn from those who have already traveled this journey. This website includes blogs that offer real-life tips and support for parents with children with special needs.
Mommy Speech Therapy
Mommy Speech Therapy realizes that one of the single greatest influences on a child’s language development comes from the parents. This website contains free resources that provide parents with some of the tools they need to help their children develop language skills. Some of the resources include:
Apps
Assistive technology
Information regarding language and hearing loss and executive function
Information regarding fluency and improving articulation
Resources in Spanish
Teach Me to Talk
Laura Mize, M.S., CCC-SLP, offers free videos to parents, caregivers, and healthcare providers that work with children with speech delays. Laura’s videos give practical advice and demonstrate strategies to help teach children with speech delays. She also informs about her:
Videos from her bestselling series
Podcasts
Blogs
Mrs. Speechie P
Mrs. Speechie P (Andi Putt) is a pediatric speech-language pathologist, autism specialist, and disabilities advocate. Her Facebook page offers:
Consultations
Informative Facebook posts
Contact information through email and Facebook Messenger
A link to her website
SC Resources for Special Needs Children and Families
SC Resources for Special Needs Children and Families is a Facebook group where parents, caregivers, and professionals can connect, share resources and ideas, and get support from others. Group members also have the chance to connect with service providers without solicitation.
The Passy Muir Speaking Valve
The Passy Muir Speaking Valve invented by patient David Muir is a life-changing medical device for tracheostomy and ventilator patients. “The Valve redirects air flow through the vocal folds, mouth and nose enabling voice and improved communication.” Here are the several documented benefits of this device: (list cited from website)
Voice/Speech Production
Improved swallowing
Secretion management
Oxygenation
Restores positive airway pressure
In-line ventilator use & interchangeability
Weaning
Decannulation
Olfaction
Infection control
Pediatric speech/language development
Quality of life
Their mascot Toby Tracheasaurus can help educate kids in a fun manner through plush toys, puppets, activities books, and more. Users of their products can receive a free Toby Tracheasaurus plush toy.
Family Connection South Carolina
Family Connection South Carolina is a resource dedicated to families with kids with special needs. This multifaceted website includes:
General information about programs and services, support for families, advocacy, etc.
Information about local healthcare and coverage resources
Resources regarding education for children, homeschooling and public schooling, transitions to adulthood, etc.
Information about classes, workshops, virtual training, conferences, etc.
Additional digital and print resources
Information about events
Feeding Tube Awareness Foundation
The Feeding Tube Awareness Foundation has a twofold purpose of bringing positive awareness about feeding tubes and providing families with support and practical advice. This web source includes:
Information about potential signs of an infant or child needing a feeding tube
Educational resources
Information for families new to feeding tubes
Information on tube types
Information about surgeries and tests
Information about feeding conditions and disorders
Information about diet and nutrition
Emotional support resources (birthday and holiday resources, info on how to attain or make a doll or stuffed toy with a feeding tube, etc.)
Information on feeding methods
Strategies for public outings such as school, vacation, camp, and more.
Information about oral eating
Troubleshooting information for tube sites, equipment and tube problems, feeding intolerances, and what to do in some emergencies
Additional resources (such as clinician resources, products, suppliers, and general resources)
The National Down Syndrome Society
The National Down Syndrome Society is dedicated to helping individuals with down syndrome achieve and exceed their potential and live a happy, fulfilling, and purposeful life. This website includes:
Information about down syndrome
Resources (including information on where to find support locally, care across lifespan, and about Covid-19)
Programs regarding public policy, education, employment, health and wellness, etc.
Information about their awareness-raising event, Buddy Walk. (Including information on where to find a walk, start and organize one in your area, etc.)
Advocacy resources
News
Volunteering information
My Belly has Two Buttons
Here is a link to purchase the adorable book, My Belly has Two Buttons. This story is about a little boy named Nico who shares about his second belly button -- his feeding tube. Educate your children with this wonderful resource!
Complex Child
Complex Child is a monthly magazine written by parents with kids with special needs. Their resource is free, and their website contains many additional resources such as:
Access to current and past issues of the magazine
Caregiving resources
Medical information
Therapy and Education information
Disability and advocacy resources
South Carolina Equipment Distribution Program
For those with difficulty hearing or speaking, the South Carolina Equipment Distribution Program (SCEPD) offers communication technology such as phones, phone accessories, tablets, and alerting devices specially crafted for those with special needs. If the applicant qualifies, they can receive the items at little or no cost so long as the South Carolina resident lives in the state. It is SCEPD’s goal for everyone to feel connected. Their website also includes information about community resources and events.
South Carolina Autism Society
The mission of the South Carolina Autism Society is as follows: “To equip those affected by autism spectrum disorders with knowledge and support to maximize their quality of life.” Their website includes:
Parent-school partnership
Case management:
Information and Referral
Advocacy resources
Covid-19 resources
Outreach/speaker requests
Information on autism (such as diagnosis information, treatment options, therapies, etc.)
Different South Carolina resources (such as intake, Medicaid, schools, ABA therapy, social security, guardianship and trusts, support, and connection resources)
Events
A marketplace
Autism Parenting
Autism Parenting is a magazine dedicated to supporting and equipping families with the information they need in order to help their children lead fulfilling lives. Their magazine includes articles relating to
Improve social skills
Improve communication
Decrease challenging behaviors
Decrease sensory sensitivities
Increase verbal abilities for people with speech difficulties
Decrease gastrointestinal discomfort
Increase awareness and acceptance of autism
Supply information on safe options so parents and autistics can make their own choices based on their individual circumstances
Special interest and success stories
Birth Injury Justice Center
The Birth Injury Justice Center offers information and resources to parents of children with birth injuries. Their website includes
Information on many types of birth injuries including but not limited to cerebral palsy and Erb’s palsy
Treatment options
Legal information (settlements, finding a lawyer, etc.)
Additional resources (such as support groups, special education opportunities, financial support, recreational activities, clinics and facilities, blogs)